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Asking Eric: I have a movement disorder that gives people the wrong idea about me


Asking Eric: I have a movement disorder that gives people the wrong idea about me

Dear Eric: I am a young adult with a movement disorder similar to Parkinson's. It causes uncontrollable, violent, jerky, muscle movements, called dyskinesias, in nearly every part of my body. These dyskinesias resemble the effects of illicit substances and can make people who don't know me very uncomfortable. How would you suggest I address this with people I interact with in passing (i.e., rideshare drivers, restaurant staff, home repair men) so they don't feel unsafe around me?

- Always on the Move

Dear Move: While you're under no obligation to disclose any information about your health to anyone and should be treated with respect no matter how you present, I understand the desire to make casual interactions more seamless. And I imagine that not having to wonder what strangers are thinking about you would probably reduce some anxiety.

This is a kind thing you're doing for others. My concern is that you're also prioritizing your own comfort. Being direct and giving context may be the best path for interactions with rideshare drivers, servers and the like. "I just want to let you know, I have a movement disorder and so I may move uncontrollably. Thanks for understanding." If there's something you'd like for them to do to make the interaction easier, this is a good time to tell them, even if it's just giving you more time or space.

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